Episode 43: Rare but Real: Navigating Life with TSC

In this episode of Inclusion Starts Now, I talk with Amy, a dedicated mom whose child was diagnosed with Tuberous Sclerosis Complex (TSC), a rare genetic disorder. Amy walks us through their journey—from noticing the first signs to getting a diagnosis—and shares how they’ve been navigating life ever since. We dive into the resources that have helped their family feel supported and informed. Let’s learn something new today and build a little more understanding around rare diseases like TSC.

https://www.tscalliance.org/ Reach out to Amy at acbredeson@gmail.com